Slow Steps Toward Transition

Meininger, Eric T. et al.

The Journal of Pediatrics , sept 2018

 

The Impact of Pulmonary Hypertension in Preterm Infants with Severe Bronchopulmonary Dysplasia through 1 Year

Lagatta, Joanne M. et al.

The Journal of Pediatrics sept 2018

 

2: Jackson WM, O’Shea TM, Allred EN, Laughon MM, Gower WA, Leviton A. Risk

factors for chronic lung disease and asthma differ among children born extremely

preterm. Pediatr Pulmonol. 2018 Aug 29. doi: 10.1002/ppul.24148. [Epub ahead of

print] PubMed PMID: 30160065.

 

29: Fill MA, Miller AM, Wilkinson RH, Warren MD, Dunn JR, Schaffner W, Jones TF.

Educational Disabilities Among Children Born With Neonatal Abstinence Syndrome.

Pediatrics. 2018 Sep;142(3). pii: e20180562. doi: 10.1542/peds.2018-0562. PubMed

PMID: 30166364.

 

30: Alabi NB, Thibadeau J, Wiener JS, Conklin MJ, Dias MS, Sawin KJ, Valdez R.

Surgeries and Health Outcomes Among Patients With Spina Bifida. Pediatrics. 2018

Sep;142(3). pii: e20173730. doi: 10.1542/peds.2017-3730. PubMed PMID: 30158199.

 

31: Brei TJ, Walker WO Jr. Perspectives on Surgical Care and Outcomes in Spina

Bifida. Pediatrics. 2018 Sep;142(3). pii: e20181985. doi: 10.1542/peds.2018-1985.

PubMed PMID: 30158198.

 

Yuskaitis CJ, Ruzhnikov MRZ, Howell KB, Allen IE, Kapur K, Dlugos DJ, Scheffer

IE, Poduri A, Sherr EH. Infantile Spasms of Unknown Cause: Predictors of Outcome

and Genotype-Phenotype Correlation. Pediatr Neurol. 2018 May 7. pii:

S0887-8994(18)30346-1. doi: 10.1016/j.pediatrneurol.2018.04.012. [Epub ahead of

print] PubMed PMID: 30174244.

 

Roquet M, Garlantezec R, Remy-Neris O, Sacaze E, Gallien P, Ropars J, Houx L,

Pons C, Brochard S. From childhood to adulthood: health care use in individuals

with cerebral palsy. Dev Med Child Neurol. 2018 Aug 31. doi: 10.1111/dmcn.14003.

[Epub ahead of print] PubMed PMID: 30171608.

 

Lagatta JM, Hysinger EB, Zaniletti I, Wymore EM, Vyas-Read S, Yallapragada S,

Nelin LD, Truog WE, Padula MA, Porta NFM, Savani RC, Potoka KP, Kawut SM,

DiGeronimo R, Natarajan G, Zhang H, Grover TR, Engle WA, Murthy K; Children’s

Hospital Neonatal Consortium Severe BPD Focus Group. The Impact of Pulmonary

Hypertension in Preterm Infants with Severe Bronchopulmonary Dysplasia through 1

Year. J Pediatr. 2018 Aug 29. pii: S0022-3476(18)30940-5. doi:

10.1016/j.jpeds.2018.07.035. [Epub ahead of print] PubMed PMID: 30172426.

 

Thrasher J, Baker J, Ventre KM, Martin SE, Dawson J, Cox R, Moore HM,

Brethouwer S, Sables-Baus S, Baker CD. Hospital to Home: A Quality Improvement

Initiative to Implement High-fidelity Simulation Training for Caregivers of

Children Requiring Long-term Mechanical Ventilation. J Pediatr Nurs. 2018 Jan –

Feb;38:114-121. doi: 10.1016/j.pedn.2017.08.028. Epub 2017 Sep 22. PubMed PMID:

28943140.

 

Maruyama M, Iijima S, Ishibashi N, Inukai M, Oriishi T, Kawasaki N, Kurata N,

Suzuki Y, Tabei I, Chiba M, Nakamura E, Higashiguchi T. Feasibility of

International Proposed Standardized Enteral Connector for Semi-Solid Formula

Feeding. Ann Nutr Metab. 2018 Sep 4;73(3):169-176. doi: 10.1159/000492674. [Epub

ahead of print] PubMed PMID: 30179861.

 

2: Romano C, Dipasquale V, Gottrand F, Sullivan PB. Gastrointestinal and

nutritional issues in children with neurological disability. Dev Med Child

Neurol. 2018 Sep;60(9):892-896. doi: 10.1111/dmcn.13921. Epub 2018 May 27.

Review. PubMed PMID: 29806137.

 

Apkon S, Noritz G. The primary care pediatrician: key to improving neuromotor

outcomes. Dev Med Child Neurol. 2018 Sep;60(9):851. doi: 10.1111/dmcn.13963.

PubMed PMID: 30133721.

 

1: LeBrun DG, Banskota B, Banskota AK, Rajbhandari T, Baldwin KD, Spiegel DA.

Socioeconomic Status Influences Functional Severity of Untreated Cerebral Palsy

in Nepal: A Prospective Analysis and Systematic Review. Clin Orthop Relat Res.

2018 Aug 30. doi: 10.1097/CORR.0000000000000476. [Epub ahead of print] PubMed

PMID: 30179955.

 

3: Mensch SM, Echteld MA, Lemmens R, Oppewal A, Evenhuis HM, Rameckers EAA. The

relationship between motor abilities and quality of life in children with severe

multiple disabilities. J Intellect Disabil Res. 2018 Sep 2. doi:

10.1111/jir.12546. [Epub ahead of print] PubMed PMID: 30175518.

 

Sheng N, Ma J, Ding W, Zhang Y. Effects of caregiver-involved interventions on

the quality of life of children and adolescents with chronic conditions and their

caregivers: a systematic review and meta-analysis. Qual Life Res. 2018 Aug 30.

doi: 10.1007/s11136-018-1976-3. [Epub ahead of print] Review. PubMed PMID:

30167936.

 

Sirin Kose S, Asilsoy S, Uzuner N, Karaman O, Ozer E, Anal O. Pulmonary

Alveolar Proteinosis in Hereditary and Autoimmune Forms With 2 Cases. Pediatr

Emerg Care. 2018 Aug 14. doi: 10.1097/PEC.0000000000001536. [Epub ahead of print]

PubMed PMID: 30113436.

 

32: Ryan SE, Beyerlein L, Lee JH, Fenton SJ, Hewes HA. An Unusual Cause for

Intermittent Stridor and Dysphagia in an Infant. Pediatr Emerg Care. 2018

Aug;34(8):e139-e140. doi: 10.1097/PEC.0000000000001572. PubMed PMID: 30080795

 

De Jesus-Rojas W, Mosquera RA, Samuels C, Eapen J, Gonzales T, Harris T, McKay

S, Boricha F, Pedroza C, Aneji C, Khan A, Jon C, McBeth K, Stark J, Yadav A,

Tyson JE. The Effect of Comprehensive Medical Care on the Long-Term Outcomes of

Children Discharged from the NICU with Tracheostomy. Open Respir Med J. 2018 Jul

31;12:39-49. doi: 10.2174/1874306401812010039. eCollection 2018. PubMed PMID:

30197702; PubMed Central PMCID: PMC6110063

 

Comorbidities of Rare Epilepsies: Results from the Rare Epilepsy Network

Ho, Nhan ThiMcDonald, Brianne et al.

The Journal of Pediatrics sept 2018

 

Longitudinal Self-Management and/or Transition Readiness per the TRxANSITION Index among Patients with Chronic Conditions in Pediatric or Adult Care Settings

Zhong, Yi et al.

The Journal of Pediatrics , sept 2018

 

Eliciting Narratives To Inform Care for Infants With Trisomy 18

Meaghann S. Weaver, Lois J. Starr, Paige N. Austin, Christina L. Stevenson, James M. Hammel

Pediatrics Sep 2018, e20180321; DOI: 10.1542/peds.2018-0321

 

Blood Pressure Elevation and Risk of Moyamoya Syndrome in Patients With Trisomy 21

Jonathan D. Santoro, Sarah Lee, Michael Mlynash, Thuy Nguyen, Daniel V. Lazzareschi, Lironn D. Kraler, Elizabeth W. Mayne, Gary K. Steinberg

Pediatrics Sep 2018, e20180840; DOI: 10.1542/peds.2018-0840

 

Long-term Outcome of Resective Epilepsy Surgery in Patients With Lennox-Gastaut Syndrome

Joon Won Kang, Soyong Eom, William Hong, Hye Eun Kwon, Soyoung Park, Ara Ko, Hoon-Chul Kang, Joon Soo Lee, Young-Mock Lee, Dong Seok Kim, Heung Dong Kim

Pediatrics Sep 2018, e20180449; DOI: 10.1542/peds.2018-0449

 

Lundine JP, Dempster R, Carpenito K, Miller-Tate H, Burdo-Hartman W, Halpin E,

Khalid O. Incidence of aspiration in infants with single-ventricle physiology

following hybrid procedure. Congenit Heart Dis. 2018 Sep;13(5):706-712. doi:

10.1111/chd.12636. Epub 2018 Aug 12. PubMed PMID: 30101544.

 

Wiernicka A, Matuszczyk M, Szlagatys-Sidorkiewicz A, Landowski P,

Toporowska-Kowalska E, Gębora-Kowalska B, Popińska K, Sibilska M,

Grzybowska-Chlebowczyk U, Więcek S, Hapyn E, Blimke-Kozieł K, Kierkuś J.

Tolerability and safety of early enteral nutrition in children after percutaneous

endoscopic gastrostomy placement: A multicentre randomised controlled trial. Clin

Nutr. 2018 Aug 28. pii: S0261-5614(18)32389-6. doi: 10.1016/j.clnu.2018.08.018.

[Epub ahead of print] PubMed PMID: 30197271.

 

De Jesus-Rojas W, Mosquera RA, Samuels C, Eapen J, Gonzales T, Harris T, McKay

S, Boricha F, Pedroza C, Aneji C, Khan A, Jon C, McBeth K, Stark J, Yadav A,

Tyson JE. The Effect of Comprehensive Medical Care on the Long-Term Outcomes of

Children Discharged from the NICU with Tracheostomy. Open Respir Med J. 2018 Jul

31;12:39-49. doi: 10.2174/1874306401812010039. eCollection 2018. PubMed PMID:

30197702; PubMed Central PMCID: PMC6110063.

Buizer AI, Martens BHM, Grandbois van Ravenhorst C, Schoonmade LJ, Becher JG,

Vermeulen RJ. Effect of continuous intrathecal baclofen therapy in children: a

systematic review. Dev Med Child Neurol. 2018 Sep 6. doi: 10.1111/dmcn.14005.

[Epub ahead of print] Review. PubMed PMID: 30187921.

 

Weaver MS, Starr LJ, Austin PN, Stevenson CL, Hammel JM. Eliciting Narratives

To Inform Care for Infants With Trisomy 18. Pediatrics. 2018 Sep 6. pii:

e20180321. doi: 10.1542/peds.2018-0321. [Epub ahead of print] PubMed PMID:

30190348.

 

9: Santoro JD, Lee S, Mlynash M, Nguyen T, Lazzareschi DV, Kraler LD, Mayne EW,

Steinberg GK. Blood Pressure Elevation and Risk of Moyamoya Syndrome in Patients

With Trisomy 21. Pediatrics. 2018 Sep 6. pii: e20180840. doi:

10.1542/peds.2018-0840. [Epub ahead of print] PubMed PMID: 30190347.

 

Woodger O, Menon K, Yazbeck M, Acharya A. A Pragmatic Method for

Identification of Long-Stay Patients in the PICU. Hosp Pediatr. 2018 Sep 6. pii:

hpeds.2018-0077. doi: 10.1542/hpeds.2018-0077. [Epub ahead of print] PubMed PMID:

30190266.

 

Anderson EE, Boyd B, Qureshi NK, Stirling JM, McCarthy V, Kuczewski MG.

Operation Homefront: Meeting Clerkship Competencies with Home Visits to Families

of Children with Special Needs. Acad Pediatr. 2018 Sep 7. pii:

S1876-2859(18)30596-5. doi: 10.1016/j.acap.2018.09.002. [Epub ahead of print]

PubMed PMID: 30201518.

 

Voepel-Lewis T. Can pain assessment tools accurately measure pain experience

of disabled individuals? Dev Med Child Neurol. 2018 Sep 10. doi:

10.1111/dmcn.14033. [Epub ahead of print] PubMed PMID: 30203566.

 

Sentenac M, Lach LM, Gariepy G, Elgar FJ. Education disparities in young

people with and without neurodisabilities. Dev Med Child Neurol. 2018 Sep 7. doi:

10.1111/dmcn.14014. [Epub ahead of print] PubMed PMID: 30194703.

 

Brunton L. The Gross Motor Function Classification System: clinicians need to

spread the word. Dev Med Child Neurol. 2018 Sep 6. doi: 10.1111/dmcn.14029. [Epub

ahead of print] PubMed PMID: 30187925.

 

9: Buizer AI, Martens BHM, Grandbois van Ravenhorst C, Schoonmade LJ, Becher JG,

Vermeulen RJ. Effect of continuous intrathecal baclofen therapy in children: a

systematic review. Dev Med Child Neurol. 2018 Sep 6. doi: 10.1111/dmcn.14005.

[Epub ahead of print] Review. PubMed PMID: 30187921.

 

Vargus-Adams J. Transformative journeys in childhood-onset disability with

the AACPDM. Dev Med Child Neurol. 2018 Oct;60(10):967. doi: 10.1111/dmcn.13991.

PubMed PMID: 30187467.

 

14: Mayston M. More studies are needed in paediatric neurodisability. Dev Med

Child Neurol. 2018 Oct;60(10):966. doi: 10.1111/dmcn.13974. PubMed PMID:

30187466.

 

15: Zhang D, Poustka L, Marschik PB, Einspieler C. The onset of hand stereotypies

in fragile X syndrome. Dev Med Child Neurol. 2018 Oct;60(10):1060-1061. doi:

10.1111/dmcn.13924. PubMed PMID: 30187465.

 

Richards CA. Does retching matter? Reviewing the evidence-Physiology and

forces. J Pediatr Surg. 2018 Aug 21. pii: S0022-3468(18)30489-5. doi:

10.1016/j.jpedsurg.2018.07.021. [Epub ahead of print] Review. PubMed PMID:

30193878.

 

Woolfenden S, Galea C, Smithers-Sheedy H, Blair E, Mcintyre S, Reid S, Delacy

M, Badawi N; Australian Cerebral Palsy Register Group; CP Quest. Impact of social

disadvantage on cerebral palsy severity. Dev Med Child Neurol. 2018 Sep 17. doi:

10.1111/dmcn.14026. [Epub ahead of print] PubMed PMID: 30221759.

 

7: Granlund M. Is independence the same as participation for young people with

disabilities? Dev Med Child Neurol. 2018 Sep 17. doi: 10.1111/dmcn.14041. [Epub

ahead of print] PubMed PMID: 30221758.

 

8: Gidaro T, Servais L. Nusinersen treatment of spinal muscular atrophy: current

knowledge and existing gaps. Dev Med Child Neurol. 2018 Sep 17. doi:

10.1111/dmcn.14027. [Epub ahead of print] Review. PubMed PMID: 30221755.

 

Salik I, Genis A, Barst S. Anesthetic management of an infant with Jeune

syndrome and severe pulmonary hypertension for tracheostomy. J Clin Anesth. 2018

Sep 12;52:76-77. doi: 10.1016/j.jclinane.2018.09.018. [Epub ahead of print]

PubMed PMID: 30218885.

 

Sen K, Agarwal R. More than meets the eye: infant presenting with hypoxic

ischaemic encephalopathy. BMJ Case Rep. 2018 Apr 5;2018. pii: bcr-2017-223614.

doi: 10.1136/bcr-2017-223614. PubMed PMID: 29622709.

 

Mcphee PG, Claridge EA, Noorduyn SG, Gorter JW. Cardiovascular disease and

related risk factors in adults with cerebral palsy: a systematic review. Dev Med

Child Neurol. 2018 Sep 17. doi: 10.1111/dmcn.14028. [Epub ahead of print] Review.

PubMed PMID: 30221763.

 

Weitzman ER, Magane KM, Wisk LE, Allario J, Harstad E, Levy S. Alcohol Use and

Alcohol-Interactive Medications Among Medically Vulnerable Youth. Pediatrics.

2018 Sep 18. pii: e20174026. doi: 10.1542/peds.2017-4026. [Epub ahead of print]

PubMed PMID: 30228168.

 

Lebrun-Harris LA, McManus MA, Ilango SM, Cyr M, McLellan SB, Mann MY, White

  1. Transition Planning Among US Youth With and Without Special Health Care

Needs. Pediatrics. 2018 Sep 17. pii: e20180194. doi: 10.1542/peds.2018-0194.

[Epub ahead of print] PubMed PMID: 30224366.

 

Nour MA, Gill H, Mondal P, Inman M, Urmson K. Perioperative care of congenital

adrenal hyperplasia – a disparity of physician practices in Canada. Int J Pediatr

Endocrinol. 2018;2018:8. doi: 10.1186/s13633-018-0063-4. Epub 2018 Sep 10. PubMed

PMID: 30214458; PubMed Central PMCID: PMC6131860.

 

Decimi V, Parma B, Panceri R, Fossati C, Mariani M, Russo S, Gervasini CC,

Cheli M, Cereda A, Selicorni A. Use of nutritional devices in Cornelia de Lange

syndrome: Data from a large Italian cohort. Am J Med Genet A. 2018

Sep;176(9):1865-1871. doi: 10.1002/ajmg.a.40372. Epub 2018 Sep 21. PubMed PMID:

30240081.

 

Franco JB, Cacita N, Freua KA, Ortega KL, de Melo Peres MPS. Treatment of

drooling with scopolamine in pediatric ICU: A case series report. Spec Care

Dentist. 2018 Sep 20. doi: 10.1111/scd.12326. [Epub ahead of print] PubMed PMID:

30238487.

 

Wu L, Hou Q, Lu Y, Bai J, Sun L, Huang Y, Zhang M, Zheng J. Feasibility of

lung ultrasound to assess pulmonary overflow in congenital heart disease

children. Pediatr Pulmonol. 2018 Sep 24. doi: 10.1002/ppul.24169. [Epub ahead of

print] PubMed PMID: 30251402.

 

Rubinstein E, Rosen RL. Respiratory symptoms associated with eosinophilic

esophagitis. Pediatr Pulmonol. 2018 Sep 20. doi: 10.1002/ppul.24168. [Epub ahead

of print] Review. PubMed PMID: 30238702.

 

Cormier D 2nd, Jean Davidson E, Young A, Augustyn M. A Young Man with Trisomy

21 and Sudden Behavioral Changes. J Dev Behav Pediatr. 2018 Sep 21. doi:

10.1097/DBP.0000000000000616. [Epub ahead of print] PubMed PMID: 30234704.

 

Gou X, Yang L, Pan L, Xiao D. Association between bronchopulmonary dysplasia

and cerebral palsy in children: a meta-analysis. BMJ Open. 2018 Sep

19;8(9):e020735. doi: 10.1136/bmjopen-2017-020735. PubMed PMID: 30232102.

 

Marupudi NI, Harris C, Pavri T, Mell B, Singh R, Ham SD, Sood S. The role of

lumboperitoneal shunts in managing chronic hydrocephalus with slit ventricles. J

Neurosurg Pediatr. 2018 Sep 21:1-6. doi: 10.3171/2018.6.PEDS17642. [Epub ahead of

print] PubMed PMID: 30239284.

 

Horne VE, Sandberg DE, Gardner M, Lantos JD, Allen DB. Growth Hormone Therapy

for a Child With Severe Cognitive Impairment. Pediatrics. 2018 Sep 20. pii:

e20173938. doi: 10.1542/peds.2017-3938. [Epub ahead of print] PubMed PMID:

30237229.

 

12: Leyenaar JK, Bogetz JF. Child Mortality in the United States: Bridging

Palliative Care and Public Health Perspectives. Pediatrics. 2018 Sep 19. pii:

e20181927. doi: 10.1542/peds.2018-1927. [Epub ahead of print] PubMed PMID:

30232218.

 

Trowbridge A, Walter JK, McConathey E, Morrison W, Feudtner C. Modes of Death

Within a Children’s Hospital. Pediatrics. 2018 Sep 19. pii: e20174182. doi:

10.1542/peds.2017-4182. [Epub ahead of print] PubMed PMID: 30232217.

 

Pontén E. Contracture formation in the upper limb in cerebral palsy starts

early. Dev Med Child Neurol. 2018 Sep 23. doi: 10.1111/dmcn.14047. [Epub ahead of

print] PubMed PMID: 30246329.

 

Fowler SB, Paglia LA, Kling C. Targeting safety for pediatric patients with a

tracheostomy. Nursing. 2018 Oct;48(10):63-64. doi:

10.1097/01.NURSE.0000545034.43815.04. PubMed PMID: 30256294.

 

Nageswaran S, Golden SL, Gower WA, King NMP. Caregiver Perceptions about their

Decision to Pursue Tracheostomy for Children with Medical Complexity. J Pediatr.

2018 Sep 17. pii: S0022-3476(18)30950-8. doi: 10.1016/j.jpeds.2018.07.045. [Epub

ahead of print] PubMed PMID: 30236548.

 

5: Murray MT, Johnson CL, Cohen B, Jackson O, Jones LK, Saiman L, Larson EL, Neu

  1. Use of antibiotics in paediatric long-term care facilities. J Hosp Infect.

2018 Jun;99(2):139-144. doi: 10.1016/j.jhin.2017.10.019. Epub 2017 Oct 27. PubMed

PMID: 29111352; PubMed Central PMCID: PMC5924588.

 

The Future of Measuring Health Outcomes for Children With Medical Complexity

Tamara D. Simon

Pediatrics Sep 2018, 142 (3) e20181925; DOI: 10.1542/peds.2018-1925

 

 

Lost Earnings and Nonmedical Expenses of Pediatric Hospitalizations

Lenisa V. Chang, Anita N. Shah, Erik R. Hoefgen, Katherine A. Auger, Huibin Weng, Jeffrey M. Simmons, Samir S. Shah, Andrew F. Beck, on behalf of the H2O Study Group

Pediatrics Sep 2018, 142 (3) e20180195; DOI: 10.1542/peds.2018-0195

 

 

Use of Oximetry to Determine Need for Adenotonsillectomy for Sleep-Disordered Breathing

Chariton E. Papadakis, Konstantinos Chaidas, Theognosia S. Chimona, PanagiotaAsimakopoulou, Alexandros Ladias, Efklidis K. Proimos, Michael Miligkos, Athanasios G.Kaditis

Pediatrics Sep 2018, 142 (3) e20173382; DOI: 10.1542/peds.2017-3382

 

Educational Disabilities Among Children Born With Neonatal Abstinence Syndrome

Mary-Margaret A. Fill, Angela M. Miller, Rachel H. Wilkinson, Michael D. Warren, John R. Dunn, William Schaffner, Timothy F. Jones

Pediatrics Sep 2018, 142 (3) e20180562; DOI: 10.1542/peds.2018-0562

 

 

Neurodevelopment After Perinatal Arterial Ischemic Stroke

Nienke Wagenaar, Miriam Martinez-Biarge, Niek E. van der Aa,