Slow Steps Toward Transition
Meininger, Eric T. et al.
The Journal of Pediatrics , sept 2018
The Impact of Pulmonary Hypertension in Preterm Infants with Severe Bronchopulmonary Dysplasia through 1 Year
Lagatta, Joanne M. et al.
The Journal of Pediatrics sept 2018
2: Jackson WM, O’Shea TM, Allred EN, Laughon MM, Gower WA, Leviton A. Risk
factors for chronic lung disease and asthma differ among children born extremely
preterm. Pediatr Pulmonol. 2018 Aug 29. doi: 10.1002/ppul.24148. [Epub ahead of
print] PubMed PMID: 30160065.
29: Fill MA, Miller AM, Wilkinson RH, Warren MD, Dunn JR, Schaffner W, Jones TF.
Educational Disabilities Among Children Born With Neonatal Abstinence Syndrome.
Pediatrics. 2018 Sep;142(3). pii: e20180562. doi: 10.1542/peds.2018-0562. PubMed
PMID: 30166364.
30: Alabi NB, Thibadeau J, Wiener JS, Conklin MJ, Dias MS, Sawin KJ, Valdez R.
Surgeries and Health Outcomes Among Patients With Spina Bifida. Pediatrics. 2018
Sep;142(3). pii: e20173730. doi: 10.1542/peds.2017-3730. PubMed PMID: 30158199.
31: Brei TJ, Walker WO Jr. Perspectives on Surgical Care and Outcomes in Spina
Bifida. Pediatrics. 2018 Sep;142(3). pii: e20181985. doi: 10.1542/peds.2018-1985.
PubMed PMID: 30158198.
Yuskaitis CJ, Ruzhnikov MRZ, Howell KB, Allen IE, Kapur K, Dlugos DJ, Scheffer
IE, Poduri A, Sherr EH. Infantile Spasms of Unknown Cause: Predictors of Outcome
and Genotype-Phenotype Correlation. Pediatr Neurol. 2018 May 7. pii:
S0887-8994(18)30346-1. doi: 10.1016/j.pediatrneurol.2018.04.012. [Epub ahead of
print] PubMed PMID: 30174244.
Roquet M, Garlantezec R, Remy-Neris O, Sacaze E, Gallien P, Ropars J, Houx L,
Pons C, Brochard S. From childhood to adulthood: health care use in individuals
with cerebral palsy. Dev Med Child Neurol. 2018 Aug 31. doi: 10.1111/dmcn.14003.
[Epub ahead of print] PubMed PMID: 30171608.
Lagatta JM, Hysinger EB, Zaniletti I, Wymore EM, Vyas-Read S, Yallapragada S,
Nelin LD, Truog WE, Padula MA, Porta NFM, Savani RC, Potoka KP, Kawut SM,
DiGeronimo R, Natarajan G, Zhang H, Grover TR, Engle WA, Murthy K; Children’s
Hospital Neonatal Consortium Severe BPD Focus Group. The Impact of Pulmonary
Hypertension in Preterm Infants with Severe Bronchopulmonary Dysplasia through 1
Year. J Pediatr. 2018 Aug 29. pii: S0022-3476(18)30940-5. doi:
10.1016/j.jpeds.2018.07.035. [Epub ahead of print] PubMed PMID: 30172426.
Thrasher J, Baker J, Ventre KM, Martin SE, Dawson J, Cox R, Moore HM,
Brethouwer S, Sables-Baus S, Baker CD. Hospital to Home: A Quality Improvement
Initiative to Implement High-fidelity Simulation Training for Caregivers of
Children Requiring Long-term Mechanical Ventilation. J Pediatr Nurs. 2018 Jan –
Feb;38:114-121. doi: 10.1016/j.pedn.2017.08.028. Epub 2017 Sep 22. PubMed PMID:
28943140.
Maruyama M, Iijima S, Ishibashi N, Inukai M, Oriishi T, Kawasaki N, Kurata N,
Suzuki Y, Tabei I, Chiba M, Nakamura E, Higashiguchi T. Feasibility of
International Proposed Standardized Enteral Connector for Semi-Solid Formula
Feeding. Ann Nutr Metab. 2018 Sep 4;73(3):169-176. doi: 10.1159/000492674. [Epub
ahead of print] PubMed PMID: 30179861.
2: Romano C, Dipasquale V, Gottrand F, Sullivan PB. Gastrointestinal and
nutritional issues in children with neurological disability. Dev Med Child
Neurol. 2018 Sep;60(9):892-896. doi: 10.1111/dmcn.13921. Epub 2018 May 27.
Review. PubMed PMID: 29806137.
Apkon S, Noritz G. The primary care pediatrician: key to improving neuromotor
outcomes. Dev Med Child Neurol. 2018 Sep;60(9):851. doi: 10.1111/dmcn.13963.
PubMed PMID: 30133721.
1: LeBrun DG, Banskota B, Banskota AK, Rajbhandari T, Baldwin KD, Spiegel DA.
Socioeconomic Status Influences Functional Severity of Untreated Cerebral Palsy
in Nepal: A Prospective Analysis and Systematic Review. Clin Orthop Relat Res.
2018 Aug 30. doi: 10.1097/CORR.0000000000000476. [Epub ahead of print] PubMed
PMID: 30179955.
3: Mensch SM, Echteld MA, Lemmens R, Oppewal A, Evenhuis HM, Rameckers EAA. The
relationship between motor abilities and quality of life in children with severe
multiple disabilities. J Intellect Disabil Res. 2018 Sep 2. doi:
10.1111/jir.12546. [Epub ahead of print] PubMed PMID: 30175518.
Sheng N, Ma J, Ding W, Zhang Y. Effects of caregiver-involved interventions on
the quality of life of children and adolescents with chronic conditions and their
caregivers: a systematic review and meta-analysis. Qual Life Res. 2018 Aug 30.
doi: 10.1007/s11136-018-1976-3. [Epub ahead of print] Review. PubMed PMID:
30167936.
Sirin Kose S, Asilsoy S, Uzuner N, Karaman O, Ozer E, Anal O. Pulmonary
Alveolar Proteinosis in Hereditary and Autoimmune Forms With 2 Cases. Pediatr
Emerg Care. 2018 Aug 14. doi: 10.1097/PEC.0000000000001536. [Epub ahead of print]
PubMed PMID: 30113436.
32: Ryan SE, Beyerlein L, Lee JH, Fenton SJ, Hewes HA. An Unusual Cause for
Intermittent Stridor and Dysphagia in an Infant. Pediatr Emerg Care. 2018
Aug;34(8):e139-e140. doi: 10.1097/PEC.0000000000001572. PubMed PMID: 30080795
De Jesus-Rojas W, Mosquera RA, Samuels C, Eapen J, Gonzales T, Harris T, McKay
S, Boricha F, Pedroza C, Aneji C, Khan A, Jon C, McBeth K, Stark J, Yadav A,
Tyson JE. The Effect of Comprehensive Medical Care on the Long-Term Outcomes of
Children Discharged from the NICU with Tracheostomy. Open Respir Med J. 2018 Jul
31;12:39-49. doi: 10.2174/1874306401812010039. eCollection 2018. PubMed PMID:
30197702; PubMed Central PMCID: PMC6110063
Comorbidities of Rare Epilepsies: Results from the Rare Epilepsy Network
Ho, Nhan ThiMcDonald, Brianne et al.
The Journal of Pediatrics sept 2018
Longitudinal Self-Management and/or Transition Readiness per the TRxANSITION Index among Patients with Chronic Conditions in Pediatric or Adult Care Settings
Zhong, Yi et al.
The Journal of Pediatrics , sept 2018
Eliciting Narratives To Inform Care for Infants With Trisomy 18
Meaghann S. Weaver, Lois J. Starr, Paige N. Austin, Christina L. Stevenson, James M. Hammel
Pediatrics Sep 2018, e20180321; DOI: 10.1542/peds.2018-0321
Blood Pressure Elevation and Risk of Moyamoya Syndrome in Patients With Trisomy 21
Jonathan D. Santoro, Sarah Lee, Michael Mlynash, Thuy Nguyen, Daniel V. Lazzareschi, Lironn D. Kraler, Elizabeth W. Mayne, Gary K. Steinberg
Pediatrics Sep 2018, e20180840; DOI: 10.1542/peds.2018-0840
Long-term Outcome of Resective Epilepsy Surgery in Patients With Lennox-Gastaut Syndrome
Joon Won Kang, Soyong Eom, William Hong, Hye Eun Kwon, Soyoung Park, Ara Ko, Hoon-Chul Kang, Joon Soo Lee, Young-Mock Lee, Dong Seok Kim, Heung Dong Kim
Pediatrics Sep 2018, e20180449; DOI: 10.1542/peds.2018-0449
Lundine JP, Dempster R, Carpenito K, Miller-Tate H, Burdo-Hartman W, Halpin E,
Khalid O. Incidence of aspiration in infants with single-ventricle physiology
following hybrid procedure. Congenit Heart Dis. 2018 Sep;13(5):706-712. doi:
10.1111/chd.12636. Epub 2018 Aug 12. PubMed PMID: 30101544.
Wiernicka A, Matuszczyk M, Szlagatys-Sidorkiewicz A, Landowski P,
Toporowska-Kowalska E, Gębora-Kowalska B, Popińska K, Sibilska M,
Grzybowska-Chlebowczyk U, Więcek S, Hapyn E, Blimke-Kozieł K, Kierkuś J.
Tolerability and safety of early enteral nutrition in children after percutaneous
endoscopic gastrostomy placement: A multicentre randomised controlled trial. Clin
Nutr. 2018 Aug 28. pii: S0261-5614(18)32389-6. doi: 10.1016/j.clnu.2018.08.018.
[Epub ahead of print] PubMed PMID: 30197271.
De Jesus-Rojas W, Mosquera RA, Samuels C, Eapen J, Gonzales T, Harris T, McKay
S, Boricha F, Pedroza C, Aneji C, Khan A, Jon C, McBeth K, Stark J, Yadav A,
Tyson JE. The Effect of Comprehensive Medical Care on the Long-Term Outcomes of
Children Discharged from the NICU with Tracheostomy. Open Respir Med J. 2018 Jul
31;12:39-49. doi: 10.2174/1874306401812010039. eCollection 2018. PubMed PMID:
30197702; PubMed Central PMCID: PMC6110063.
Buizer AI, Martens BHM, Grandbois van Ravenhorst C, Schoonmade LJ, Becher JG,
Vermeulen RJ. Effect of continuous intrathecal baclofen therapy in children: a
systematic review. Dev Med Child Neurol. 2018 Sep 6. doi: 10.1111/dmcn.14005.
[Epub ahead of print] Review. PubMed PMID: 30187921.
Weaver MS, Starr LJ, Austin PN, Stevenson CL, Hammel JM. Eliciting Narratives
To Inform Care for Infants With Trisomy 18. Pediatrics. 2018 Sep 6. pii:
e20180321. doi: 10.1542/peds.2018-0321. [Epub ahead of print] PubMed PMID:
30190348.
9: Santoro JD, Lee S, Mlynash M, Nguyen T, Lazzareschi DV, Kraler LD, Mayne EW,
Steinberg GK. Blood Pressure Elevation and Risk of Moyamoya Syndrome in Patients
With Trisomy 21. Pediatrics. 2018 Sep 6. pii: e20180840. doi:
10.1542/peds.2018-0840. [Epub ahead of print] PubMed PMID: 30190347.
Woodger O, Menon K, Yazbeck M, Acharya A. A Pragmatic Method for
Identification of Long-Stay Patients in the PICU. Hosp Pediatr. 2018 Sep 6. pii:
hpeds.2018-0077. doi: 10.1542/hpeds.2018-0077. [Epub ahead of print] PubMed PMID:
30190266.
Anderson EE, Boyd B, Qureshi NK, Stirling JM, McCarthy V, Kuczewski MG.
Operation Homefront: Meeting Clerkship Competencies with Home Visits to Families
of Children with Special Needs. Acad Pediatr. 2018 Sep 7. pii:
S1876-2859(18)30596-5. doi: 10.1016/j.acap.2018.09.002. [Epub ahead of print]
PubMed PMID: 30201518.
Voepel-Lewis T. Can pain assessment tools accurately measure pain experience
of disabled individuals? Dev Med Child Neurol. 2018 Sep 10. doi:
10.1111/dmcn.14033. [Epub ahead of print] PubMed PMID: 30203566.
Sentenac M, Lach LM, Gariepy G, Elgar FJ. Education disparities in young
people with and without neurodisabilities. Dev Med Child Neurol. 2018 Sep 7. doi:
10.1111/dmcn.14014. [Epub ahead of print] PubMed PMID: 30194703.
Brunton L. The Gross Motor Function Classification System: clinicians need to
spread the word. Dev Med Child Neurol. 2018 Sep 6. doi: 10.1111/dmcn.14029. [Epub
ahead of print] PubMed PMID: 30187925.
9: Buizer AI, Martens BHM, Grandbois van Ravenhorst C, Schoonmade LJ, Becher JG,
Vermeulen RJ. Effect of continuous intrathecal baclofen therapy in children: a
systematic review. Dev Med Child Neurol. 2018 Sep 6. doi: 10.1111/dmcn.14005.
[Epub ahead of print] Review. PubMed PMID: 30187921.
Vargus-Adams J. Transformative journeys in childhood-onset disability with
the AACPDM. Dev Med Child Neurol. 2018 Oct;60(10):967. doi: 10.1111/dmcn.13991.
PubMed PMID: 30187467.
14: Mayston M. More studies are needed in paediatric neurodisability. Dev Med
Child Neurol. 2018 Oct;60(10):966. doi: 10.1111/dmcn.13974. PubMed PMID:
30187466.
15: Zhang D, Poustka L, Marschik PB, Einspieler C. The onset of hand stereotypies
in fragile X syndrome. Dev Med Child Neurol. 2018 Oct;60(10):1060-1061. doi:
10.1111/dmcn.13924. PubMed PMID: 30187465.
Richards CA. Does retching matter? Reviewing the evidence-Physiology and
forces. J Pediatr Surg. 2018 Aug 21. pii: S0022-3468(18)30489-5. doi:
10.1016/j.jpedsurg.2018.07.021. [Epub ahead of print] Review. PubMed PMID:
30193878.
Woolfenden S, Galea C, Smithers-Sheedy H, Blair E, Mcintyre S, Reid S, Delacy
M, Badawi N; Australian Cerebral Palsy Register Group; CP Quest. Impact of social
disadvantage on cerebral palsy severity. Dev Med Child Neurol. 2018 Sep 17. doi:
10.1111/dmcn.14026. [Epub ahead of print] PubMed PMID: 30221759.
7: Granlund M. Is independence the same as participation for young people with
disabilities? Dev Med Child Neurol. 2018 Sep 17. doi: 10.1111/dmcn.14041. [Epub
ahead of print] PubMed PMID: 30221758.
8: Gidaro T, Servais L. Nusinersen treatment of spinal muscular atrophy: current
knowledge and existing gaps. Dev Med Child Neurol. 2018 Sep 17. doi:
10.1111/dmcn.14027. [Epub ahead of print] Review. PubMed PMID: 30221755.
Salik I, Genis A, Barst S. Anesthetic management of an infant with Jeune
syndrome and severe pulmonary hypertension for tracheostomy. J Clin Anesth. 2018
Sep 12;52:76-77. doi: 10.1016/j.jclinane.2018.09.018. [Epub ahead of print]
PubMed PMID: 30218885.
Sen K, Agarwal R. More than meets the eye: infant presenting with hypoxic
ischaemic encephalopathy. BMJ Case Rep. 2018 Apr 5;2018. pii: bcr-2017-223614.
doi: 10.1136/bcr-2017-223614. PubMed PMID: 29622709.
Mcphee PG, Claridge EA, Noorduyn SG, Gorter JW. Cardiovascular disease and
related risk factors in adults with cerebral palsy: a systematic review. Dev Med
Child Neurol. 2018 Sep 17. doi: 10.1111/dmcn.14028. [Epub ahead of print] Review.
PubMed PMID: 30221763.
Weitzman ER, Magane KM, Wisk LE, Allario J, Harstad E, Levy S. Alcohol Use and
Alcohol-Interactive Medications Among Medically Vulnerable Youth. Pediatrics.
2018 Sep 18. pii: e20174026. doi: 10.1542/peds.2017-4026. [Epub ahead of print]
PubMed PMID: 30228168.
Lebrun-Harris LA, McManus MA, Ilango SM, Cyr M, McLellan SB, Mann MY, White
- Transition Planning Among US Youth With and Without Special Health Care
Needs. Pediatrics. 2018 Sep 17. pii: e20180194. doi: 10.1542/peds.2018-0194.
[Epub ahead of print] PubMed PMID: 30224366.
Nour MA, Gill H, Mondal P, Inman M, Urmson K. Perioperative care of congenital
adrenal hyperplasia – a disparity of physician practices in Canada. Int J Pediatr
Endocrinol. 2018;2018:8. doi: 10.1186/s13633-018-0063-4. Epub 2018 Sep 10. PubMed
PMID: 30214458; PubMed Central PMCID: PMC6131860.
Decimi V, Parma B, Panceri R, Fossati C, Mariani M, Russo S, Gervasini CC,
Cheli M, Cereda A, Selicorni A. Use of nutritional devices in Cornelia de Lange
syndrome: Data from a large Italian cohort. Am J Med Genet A. 2018
Sep;176(9):1865-1871. doi: 10.1002/ajmg.a.40372. Epub 2018 Sep 21. PubMed PMID:
30240081.
Franco JB, Cacita N, Freua KA, Ortega KL, de Melo Peres MPS. Treatment of
drooling with scopolamine in pediatric ICU: A case series report. Spec Care
Dentist. 2018 Sep 20. doi: 10.1111/scd.12326. [Epub ahead of print] PubMed PMID:
30238487.
Wu L, Hou Q, Lu Y, Bai J, Sun L, Huang Y, Zhang M, Zheng J. Feasibility of
lung ultrasound to assess pulmonary overflow in congenital heart disease
children. Pediatr Pulmonol. 2018 Sep 24. doi: 10.1002/ppul.24169. [Epub ahead of
print] PubMed PMID: 30251402.
Rubinstein E, Rosen RL. Respiratory symptoms associated with eosinophilic
esophagitis. Pediatr Pulmonol. 2018 Sep 20. doi: 10.1002/ppul.24168. [Epub ahead
of print] Review. PubMed PMID: 30238702.
Cormier D 2nd, Jean Davidson E, Young A, Augustyn M. A Young Man with Trisomy
21 and Sudden Behavioral Changes. J Dev Behav Pediatr. 2018 Sep 21. doi:
10.1097/DBP.0000000000000616. [Epub ahead of print] PubMed PMID: 30234704.
Gou X, Yang L, Pan L, Xiao D. Association between bronchopulmonary dysplasia
and cerebral palsy in children: a meta-analysis. BMJ Open. 2018 Sep
19;8(9):e020735. doi: 10.1136/bmjopen-2017-020735. PubMed PMID: 30232102.
Marupudi NI, Harris C, Pavri T, Mell B, Singh R, Ham SD, Sood S. The role of
lumboperitoneal shunts in managing chronic hydrocephalus with slit ventricles. J
Neurosurg Pediatr. 2018 Sep 21:1-6. doi: 10.3171/2018.6.PEDS17642. [Epub ahead of
print] PubMed PMID: 30239284.
Horne VE, Sandberg DE, Gardner M, Lantos JD, Allen DB. Growth Hormone Therapy
for a Child With Severe Cognitive Impairment. Pediatrics. 2018 Sep 20. pii:
e20173938. doi: 10.1542/peds.2017-3938. [Epub ahead of print] PubMed PMID:
30237229.
12: Leyenaar JK, Bogetz JF. Child Mortality in the United States: Bridging
Palliative Care and Public Health Perspectives. Pediatrics. 2018 Sep 19. pii:
e20181927. doi: 10.1542/peds.2018-1927. [Epub ahead of print] PubMed PMID:
30232218.
Trowbridge A, Walter JK, McConathey E, Morrison W, Feudtner C. Modes of Death
Within a Children’s Hospital. Pediatrics. 2018 Sep 19. pii: e20174182. doi:
10.1542/peds.2017-4182. [Epub ahead of print] PubMed PMID: 30232217.
Pontén E. Contracture formation in the upper limb in cerebral palsy starts
early. Dev Med Child Neurol. 2018 Sep 23. doi: 10.1111/dmcn.14047. [Epub ahead of
print] PubMed PMID: 30246329.
Fowler SB, Paglia LA, Kling C. Targeting safety for pediatric patients with a
tracheostomy. Nursing. 2018 Oct;48(10):63-64. doi:
10.1097/01.NURSE.0000545034.43815.04. PubMed PMID: 30256294.
Nageswaran S, Golden SL, Gower WA, King NMP. Caregiver Perceptions about their
Decision to Pursue Tracheostomy for Children with Medical Complexity. J Pediatr.
2018 Sep 17. pii: S0022-3476(18)30950-8. doi: 10.1016/j.jpeds.2018.07.045. [Epub
ahead of print] PubMed PMID: 30236548.
5: Murray MT, Johnson CL, Cohen B, Jackson O, Jones LK, Saiman L, Larson EL, Neu
- Use of antibiotics in paediatric long-term care facilities. J Hosp Infect.
2018 Jun;99(2):139-144. doi: 10.1016/j.jhin.2017.10.019. Epub 2017 Oct 27. PubMed
PMID: 29111352; PubMed Central PMCID: PMC5924588.
The Future of Measuring Health Outcomes for Children With Medical Complexity
Tamara D. Simon
Pediatrics Sep 2018, 142 (3) e20181925; DOI: 10.1542/peds.2018-1925
Lost Earnings and Nonmedical Expenses of Pediatric Hospitalizations
Lenisa V. Chang, Anita N. Shah, Erik R. Hoefgen, Katherine A. Auger, Huibin Weng, Jeffrey M. Simmons, Samir S. Shah, Andrew F. Beck, on behalf of the H2O Study Group
Pediatrics Sep 2018, 142 (3) e20180195; DOI: 10.1542/peds.2018-0195
Use of Oximetry to Determine Need for Adenotonsillectomy for Sleep-Disordered Breathing
Chariton E. Papadakis, Konstantinos Chaidas, Theognosia S. Chimona, PanagiotaAsimakopoulou, Alexandros Ladias, Efklidis K. Proimos, Michael Miligkos, Athanasios G.Kaditis
Pediatrics Sep 2018, 142 (3) e20173382; DOI: 10.1542/peds.2017-3382
Educational Disabilities Among Children Born With Neonatal Abstinence Syndrome
Mary-Margaret A. Fill, Angela M. Miller, Rachel H. Wilkinson, Michael D. Warren, John R. Dunn, William Schaffner, Timothy F. Jones
Pediatrics Sep 2018, 142 (3) e20180562; DOI: 10.1542/peds.2018-0562
Neurodevelopment After Perinatal Arterial Ischemic Stroke
Nienke Wagenaar, Miriam Martinez-Biarge, Niek E. van der Aa,